Monday, June 6, 2011

A Jacob/Henry Update

Well-- based on the latest info we have gotten, little Jacob/Henry did not die of re-feeding syndrome--- he never actually got that much nutrition in his very short life.

He died from a common genetic defect in kids with Downs--- a defect that is surgically repaired in the west in the first days after birth.

Jacob/Henry got an infection at the site where they placed a feeding tube. It is that infection that killed him.

Simple standard western medical protocol would have kept him alive---- But for lack of funds or lack of knowledge these kids are left to die in EE.

again-- a sad day. I miss you little Henry.

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